In a nutshell, over the next five years I had two unsuccessful six-month courses of Clomid, an unsuccessful round of Injectables and an unsuccessful IVF. My purpose of writing all this is to give you all hope. I have been taken one pill in the morning everyday before breakfast for two weeks now. I probably went on about 20 different pills between 14-18. © 2021 Eating bird food • AN ELITE CAFEMEDIA FOOD PUBLISHERsite by Katelyn Calautti + Made to thrive. It was for my mental health. What if I got really lazy? I keep thining that I just have to be patient and wait it out! <— Easy peasy… hopefully you sense the sarcasm here. I wish they would just return. Since the progestin challenge didn’t work I was referred to an endocrinologist (fertility specialist) and after looking over my blood work he diagnosed me with hypothalamic amenorrhea. ... Just wanted to see if anyone had experience with post pill amenorrhea? I was taking BCP for 15 years… Before them I was healthy teenager with regular periods and low PMS. By age 14, I had improved enough to return home and go back to school and it was then that I discovered what I felt was my purpose in life-running! I have a normal BMI, but I train for marathons – so I assumed it was because I run too much. Post Pill Amenorrhea Should I start my new contraceptive pill? This was too good to be true, I could not believe it! Thanks!! I went off the pill recently, after being on it for approximately 12 years, just because I didn’t want the hormones anymore, and so when I am ready to start trying to get pregnant, I could easily as I thought since I was on the pill so long, it may be more difficult. According to Gynaeonline, up to 3 percent of women develop post-pill amenorrhea 1. One study on the discontinuation of oral contraceptives found it took up to nine months for women’s cycles to regulate. Surely MY weight couldn’t be an issue if SHE had managed to get pregnant? After 6 weeks of treatment, finally my period returned. Do you have an update on this issue. How is that possible? Apparently this post-pill amenorrhea is not uncommon, Ive been on the pill for 10 years. Unlike Paige, some women’s periods just stop when they finish their last pill pack. I gained 18 pounds in a 3 month period and stopped exercising completely. In secondary amenorrhea, a woman who has had normal regular periods so far suddenly stops menstruating. I came off it after my first year abs and didn’t see my period for 6 weeks. I can totally relate to your story and yes, my period did come back naturally but it took a little self-reflection, some changes to my routine and some weight gain. Required fields are marked *. A lot of women have reached out to me lately and so Nicola and I thought it would be helpful for me to share my story more formally through a blog post….so here it goes! I scheduled a chat with Nicola. My soulmate and I have decided we want to get married and have babies and so I decide to come off the pill! I was also diagnosed with HA. Excited to become a mom, Elise, 34, came to see me in my medical practice, so frustrated that getting pregnant wasn’t going at all the way she thought it would. I won races, I enjoyed it, I had more confidence than I had ever had before in my life. Your email address will not be published. Quitting hormonal birth control can be a bumpy ride for some women. Sending you lots of love and positive vibes! The hospital agreed I could postpone my second IVF cycle until the end of the year, to give us chance to conceive naturally. But i must say that when i went on the pill i was not told about post pill ammenorhea, but they asssured me the pill has no longterm effects on reproduction. The incidence of post-pill amenorrhea ranges from 0.2% to 3%. I need to hear some success stories to keep my PMA up.. Also has anyone had accupuncture to treat Post Pill Amenorrhea?, if so was it any use? That’s why we’re here. … There is no cure for HA so they don’t have anything to prescribe. I also started looking for a new gynecologist and booked an appointment. For me it is not just waiting for my period to return. Your doctor may do some tests and in about one-half of women with post-pill amenorrhea there is an umderlying reason found. I would love to hear how you are doing! 1979 Sep;9(9):93-102. I had amenorrhea for a year after going off the pill for the first time and conceived DC1 without ever having a period. <— I was on birth control in college so even if I wasn’t ovulating then, the birth control withdrawal bleed made me think and feel like I was. I have taken amh exam and pretty scare to see if I an fertile, waiting results. Post pill amenorrhea is described as the loss of menstrual periods for at least 6 months after stopping birth control pills. Any success stories of getting period back after going off birth control pill? I have lost about 2 stone in a year and half through exercise and healthy eating and am glad to see that this may be a contributing factor. Plus, I know from previous comments that there are others out there struggling with similar issues so I wanted to share. Post-Pill Amenorrhea. ^what are your thoughts? Birth control pills contain both estrogen and progesterone. It was by this time September. But please check with your doctor. I had a good cry and then I really thought about it. I am seeing so many specialists. Let us know how you are doing! I’m determined to restore my cycles! I found your blog post after furiously googling ‘how long does it take to get your period back after coming off the pill’…. I’ve stopped tracking what I eat and I’m letting myself eat whatever I’m craving. Now What? In case this is something you are experiencing, read this article, particularly the section that starts with “The workup of primary amenorrhoea included the following:” as it gives an excellent rundown of the different tests that should be performed. I still couldn’t ditch the gym yet and was waiting for my period to magically come back thinking it was just post pill amenorrhea. I was thinking about the possibility of not being able to have children, possibly having a brain tumor and also wondering about the exercise and dietary recommendations. I haven’t gotten the MRI or the ultrasound, but I’ve been working to embrace his lifestyle suggestions. What if I became depressed? Post-pill amenorrhea may be caused by the pituitary gland being suppressed 1. Why were we dancing the dance at the right times each month but I wasn’t getting pregnant? Your doctor may do some tests and in about one-half of women with post-pill amenorrhea … Just came across your post and it really resonates. I hope I return to normal soon, I may have to start exercising a bit more though after reading how some people had to slack off. Hi Emmy. <— I feel like most women out there can relate to these feelings. I heard that TCM (Traditional Chinese Medicine) had proven effective in brining a woman’s menstrual cycle back to regularity so I began treatment which consisted of a combination of acupuncture twice a week and terrible tasting herbal tea that I need to drink every morning and night. When I do, there is no sign of any period. Did it come back naturally? Ive seen a homeopath, acupuncturist, NHS doctor, Private doctor, endocrinologist, reflexologist, therapists, and NOTHING HAS WORKED. ... I’m experiencing post pill amenorrhea (9 months so far) and developed moderate-severe acne since stopping the pill. meet brittany Claudia, London. I’m so sorry to hear you’re experiencing the same issues. https://www.eatingbirdfood.com/healing-hypothalamic-amenorrhea/, http://nicolejardim.com/bringbackyourperiodmasterclass/orderform.html, https://www.eatingbirdfood.com/amenorrhea-update/, 10 Mason Jar Salads to Meal Prep This Summer. I worked out 5-6 times a week and ate low fat, low carb diet. This typically means you either have low serum estradiol (estrogen), a dysfunction with the hypothalamic-pituitary axis, or a problem with the uterine outflow tract. When my period did not return after 4 months I went to my obgyn and she too put me on estrogen and progesterone. I’ve been implementing the lifestyle changes but I still haven’t regained my cycle yet. I’m finding it very difficult emotionally, I hate to admit my life has probably ruled by watching what I eat and making sure I ran off any food guilt from the weekend. Best of luck to you — I hope the lifestyle changes work for you! I never thought I’d say this but god! I’m sorry to hear that you’re dealing with a similar issue. Plus, I knew that in the next couple years we would likely want to start a family. I could tell she was kind of annoyed with me for just going off them without asking. You can read the full story here: https://www.eatingbirdfood.com/healing-hypothalamic-amenorrhea/. I am going through the exact same thing and have been hoping and praying to hear someone else who was experiencing what I am going through. As a food lover, that part is easy for me! Cause of Post-pill Amenorrhea. I am a model! Then I broke up with my long term boyfriend and came off the pill. Hi Emily! If you have any advice for me at this point, I’m open to hear it. I am absolutely in love with him! I did an update in November (https://www.eatingbirdfood.com/amenorrhea-update/), but I didn’t end up getting an MRI so I don’t have any results for that. My estradiol is super low due to the same issues. I haven’t heard an update from you. Here’s a little snippet of my thoughts that day: I’ve heard of athletes losing their menstrual cycle, but I’m not THAT fit and I feel like I eat plenty. Amenorrhea has many causes, including hormone problems, eating habits and exercise, or a birth defect. I just want you to know you aren’t alone. I had a healthy BMI of 21 and ran about 20 miles a week over 4 days. Any luck with getting your period yet? I’m so sorry to hear that you’re struggling with this as well. Thanks for sharing! Did your period came back already? I have very low oestrogen, LH and FSH. Hi:) I could tell she was kind of annoyed with me for just going off them without asking. I was exercising 4-5 a week and was on a low carb low glycemic diet. Just curious to know if anyone has any success stories while experiencing post pill amenorrhea? Any updates? He did his needle work, prescribed me a few supplements and made me feel relieved by saying that he sees women all the time with the same issues after coming off hormonal birth control. Post pill weight gain No period in 10weeks and all pregnancy tests are negative Desperately want to get pregnant Spotting while on pill week before period Cerazette Mini pill- still NO periods No period after birth control pill (yasmin)! I say just keep at it and your body will figure things out. best. I have a BMI of 19, its on the low side but I was this weight when I started my period. I have severe hot flashes, insomnia and awful headaches. I read on another blog that Vitex works miracles to regulate periods. I ‘needed’ to run. Still no period to this day. And if so, how long did it take? What had my childhood eating disorders done to my body? How is your AMH/LH/FSH/Testo/Prolactin? Hi Brittany, I changed pills so many times I can’t even tell you, the pill made me spotty, fat, moody, everything. I’m Lou. Notify me of follow-up comments by email. Blood tests came back ok, and actually FSH was 8.6 and LH 12 which to me doesn’t suggest a HA problem due to over exercise but I’m just an avid googler not a Doctor! Your email address will not be published. DC2 was conceived (again without a period) after 9 months post-pill and DC3 was conceived 6 months after stopping breast feeding without ever having a period. I’m doing a few other things to help as well. On the 27th day of that cycle I was convinced I would wake up to a really heavy period. Leaving the office I was scared. I see lots of posts, I love hearing the stories from those of you who reach out to me on Facebook, and try to help you in whatever way I can. This was despite being told by the embryologist that we had the highest quality embryo he had ever seen and that we had a 75% chance of it working. We had one more attempt at IVF on the NHS, but what if it didn’t work? Best of luck with your journey. He is a chunky little fella. Anyway, I’m googling other women’s stories to try and put my mind at ease and feel like I can relate to someone else. This occurs when the hypothalamus isn’t sending the signal to create hormones for your body. I feel like he’s just getting older and I’m just getting older and I have no clue when my body is going to go back to a regular cycle. If you are not getting a period once you stop the pill, investigations should start … 2 years later I have just come off of the pill again 5 weeks ago. However, it can also happen due to medications, contraceptives, lifestyle factors or other complications. I’ve been on the pill for 3 years. Have you found a treatment path that works for you? After 3 months on no period and a number of negative pregnancy tests, I started to panic. I want to add in some strength training with weights as well, but I haven’t done so yet. I went off the pill after about 10 years. I am so glad I have found this article! My BMI is 20 and I exercise 3-4 times a week. From everything I’ve read, I knew that the pill wasn’t going to solve my issues. I had an MRI scan and it came back negative. It’s been over 4 weeks, and I’ve had no withdrawal bleeding what so ever, so I was a little concerned I actually got pregnant right away as I guess there is a chance.. but now I have a little more information to keep in mind. I had lost some weight in an attempt to control my PCOS but when I went to see the RE, they diagnosed me with Hypothalamic Amenorrhea. We ended up going the IvF route and I have a gorgeous boy as a result. I’m still working to balance everything out! If you aren’t […] Reply. Thanks for your interest. I went off the pill twice (had to go back on a second time because the acne got horrendous, and period wasn’t coming back). I was most relieved to get a good AMH test result of 45 as this shows my egg reserve is good (so they are in there – they just need to get moving please!) 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